Ehlers- Danlos Syndrome Treatment

This GoFundMe is set up to help cover medical and travel expenses for Brianne Wadsworth. It has been one of the most difficult journeys that our family has been on watching Brianne suffer for years as she sees multiple doctors and specialists to figure out the cause of the debilitating and tremendous pain she has been experiencing. Finally, doctors diagnosed her with Ehlers- Danlos syndrome.

Ehlers- Danlos syndrome (EDS) is a complex connective tissue disorder that is inherited genetically from parents. It can affect one or more joints throughout the body, and there are several types of EDS. Brianne has hypermobile EDS. Hypermobile joints are loose, as the collagen is not strong enough to support the joints, and it is very painful. Brianne has joints that partially and completely dislocate.

Some of the debilitating symptoms she experiences in addition to her joints regularly dislocating are chronic pain and fatigue, migraines, neck pain, gastric and digestive problems, unstable joints, pelvic pain, hair loss, vision problems, curvature of the spine, early osteoarthritis, anxiety, swelling in joints, circulation problems, neuropathy, cranialcervical instability and pain from joint at top of her neck which makes it very difficult to hold her head up. Her jaw regularly dislocates, and she has become very prone to dizziness and fainting. Walking is extremely difficult for Brianne with the pain and dislocations of her joints.

This syndrome has debilitated every single aspect of her life causing her to spend every single day in pain and isolation. Because this syndrome was at an advanced stage when she was diagnosed, there are not many options aside from managing pain and undergoing treatments that can give her back some sense of normalcy in her life.

Brianne has exhausted every option of medical care in Montana and needs to seek treatment options out of state that specialize in advanced forms of EDS management. These treatment options are not covered by medical insurance. These treatment facilities that specialize in EDS are Brianne's last hope for getting her life back to a place where she can function without the debilitating pain and other symptoms that has completely enveloped her life over the last couple of years. ALL money raised will go toward travel expenses and medical costs accrued with treatment. To know Brianne is to love Brianne, and to see her suffer as much as she has for the last couple of years has been heartbreaking for all who know her. No donation amount is too small, and we appreciate each and every person who can donate, share, and spread awareness about Ehlers-Danlos Syndrome.